Lawrenceville, Georgia Oct 23, 2023 (Issuewire.com) – Rare Wish is pleased to announce its official launch as a new nonprofit organization dedicated to supporting children and adults with rare diseases. Founded by a group of passionate individuals, Rare Wish seeks to improve the lives of children and their families who are affected by rare diseases. Trena Myers, Rare Wish CEO, shares “Our mission is to improve the quality of life for rare families by granting wishes, funding clinical innovation, and offering free healthcare tools.”
According to the National Institutes of Health (NIH), a rare disease is defined as a condition that affects fewer than 200,000 people in the United States. While each rare disease may be unique, they all share one commonality: a lack of resources and support. Rare Wish aims to bridge this gap by providing financial assistance, educational resources, and emotional support to families impacted by rare diseases.
“We are thrilled to launch Rare Wish and make a difference in the lives of children and families affected by rare diseases,” said Beth Nguyen, Founder of Rare Wish. “Our goal is to create a community of support and hope for those who often feel isolated and alone in their struggles. We originally started as a program within Rare STRIDES and shortly realized the importance of separating Rare Wish into its own identity.”
Their Community Relations Director, John Winstanley, is excited about getting into the community and sharing about the programs they provide to #makerarevisible.
Rare Wish plans to partner with hospitals, healthcare providers, and other nonprofit organizations to raise awareness about rare diseases and provide much-needed resources to families. They will also host fundraising events and campaigns to support their mission.
For more information about Rare Wish and how to get involved, please visit their website at www.rarewish.org
Source :Rare Wish
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